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Celine Dion performing at the Macys Thanksgiving Parade in 2019© Getty Images

Celine Dion shares raw glimpse inside health battle and life away from the stage in epic comeback – details

The "My Heart Will Go On" singer is going in deep about her battle with Stiff Person Syndrome

Ahad Sanwari
Ahad Sanwari - New York
Senior WriterNew York
January 30, 2024
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Celine Dion is staging a personal comeback, but she's not returning to the stage just yet. Instead, her journey over the past year will be captured in a new documentary.

Amazon Prime Video announced that they had acquired the rights to produce a new feature-length documentary titled I Am: Celine Dion, directed by Oscar-nominated filmmaker Irene Taylor.

The project will provide a raw and personal glimpse inside the 55-year-old Canadian songstress' battle with Stiff Person Syndrome, which she announced in a heartbreaking video in December 2022. Watch it below…

WATCH: Celine Dion reveals her Stiff Person Syndrome diagnosis as she cancels her shows

The documentary will look at the singer's past and present as she continues to battle the rare disease, while also providing a peek at her life at home recovering, building back her strength, and continuing to work on music.

It also promises a dive into her couture touring wardrobe, time in the recording studio, and has been deemed an "emotional, energetic, and poetic love letter to music" in an official statement.

What has Celine Dion said about her new documentary?

Celine shared a personal message with regards to bringing her story to the screen once again. "This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me.

Celine Dion in a headshot to promote her documentary "I Am: Celine Dion"© Feeling Productions Inc
Celine's story with Stiff Person Syndrome will be told in a new documentary

"As the road to resuming my performing career continues, I have [realized] how much I have missed it, of being able to see my fans. During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis."

MORE: Celine Dion's 13 siblings: all you need to know about the singer's family

When will I Am: Celine Dion be released?

A release date for the documentary has not yet been announced, although it is believed it will be out later this year.

Jennifer Salke, head of Amazon MGM Studios, also shared a statement, which reads: "Celine Dion is a global megastar with a career defined not only by her extraordinary work ethic and passion, but by her dedication to her fans.

 this screengrab, Celine Dion performs during "One World: Together At Home" presented by Global Citizen on April, 18, 2020. © Getty Images
The singer has remained away from the public eye since late 2021 due to health challenges

"This documentary is a raw, intimate portrayal of a pivotal time in her personal life and career, pulling back the curtain on her journey as she overcomes an unthinkable diagnosis. It's an [honor] to be trusted with her story, and we can't wait to share it with Prime Video audiences around the world."

MORE: All the tender moments between Celine Dion and the late René Angélil during 21-year marriage

What do we know about Celine's diagnosis and move away from the spotlight?

It was in late 2021 that the "Power of Love" singer first canceled her Las Vegas residency due to what was described as "severe and persistent muscle spasms."

 Singer Celine Dion on The Tonight Show Starring Jimmy Fallon in brown dress with off the shoulder oversized detailing© Getty Images
"I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis."

In 2022, all her upcoming US and Canadian tour dates were also canceled, and in December of that year, she announced that all her tour dates were indefinitely postponed due to her disease.

SEE: Celine Dion's rarely seen sons: 12 photos of her brood supporting her through her diagnosis

Her older sister Claudette has shared frequent updates about her sister's health, stating that she is slowly but surely trying to build back her strength, although due to how little is known about the disease, it remains uncertain when she'll return to the big stage.

Celine Dion, her boys, and their dogs in happier times.© Instagram
The Canadian powerhouse is recovering at home with the help of family

Speaking to Canadian site 7 jours, Claudette recently said: "Some people have lost hope because it's an illness that isn't well known. If only you knew the number of phone calls the Foundation [Fondation Maman Dion, which helps underprivileged children] gets about Celine! People tell us they love her and they're praying for her. She gets so many messages, presents and blessed crucifixes."

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